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8.04.2011

Her eyes

Part of our routine involves heading to Duke every quarter to check Darcy's eyes. 



Our first visit was just a few weeks after she came home last March.  As we began treatments ~ several types of eyedrops and two goniotomy surgeries ~ we began to see the pressure in her glaucoma affected eye start dropping.  


Unfortunately this visit we saw a pretty big increase in pressure instead of it holding steady at the "below damage level" numbers we had seen earlier this year.  I knew things weren't as good as they had been when the resident who did the initial exam took one pressure reading, started flipping through Darcy's chart, took another reading, got an ever so slight frown and took yet another reading.  Then when Dr. F came in she totally skipped checking DQ's vision (which, from the exam by the resident, seems to be holding steady at this time) and went straight to checking her eye pressure.   

 

Dr. F is concerned because of the damage done to DQ's optic nerve during the first three years of her life when the pressure ran unchecked.  And the fact that the pressure has climbed up from back in March indicates that it is time to take action.  Darcy of course was listening and is not pleased at all with the discussion of surgery (this time to implant a tiny little valve that will help control the pressure) again.  


The last option we have before surgery is scheduled is replacing one of her twice-daily eye drops with a new one.  Apparently one of her drops has a high tendency of people building a tolerance to it, but it has less side effects than the new one we've switched to.  (Main side effect of this new one being that it gets into the blood stream through the tear duct and makes patients REALLY sleepy for about 30 minutes ~ a blessing at bedtime, not so much in the mornings...)  But we'll deal with sleepiness and give it a shot until our follow-up visit on September 2.  Pressure that day will determine if we leave after the exam or go to a pre-op appointment.  

To say that we are disappointed would be accurate.  However, while this increase in pressure surprised us, it certainly has not surprised our God.  We know that He has all things, including our baby girl's eyesight in her right eye, under control.  And so we will try what the experts say yet put our trust in His healing...

20 comments:

Jenn said...

She's just so beautiful. Praying for her!

Laine said...

Ten more praying with you here...

Debbie Sauer said...

She has such beautiful eyes! Praying that things will go well for all of you. Blessings

anything but LoKEY said...

Praying with you.

We just received a bit of a negative report as well...another surgery. Our little one is not looking forward to it either. So I def. understand.

God's favor upon her and your family. :)

Anonymous said...

Praying for your BEAUTIFUL girl. And her mama.

Pam

Melissa said...

Praying for your sweet Darcy and her eyes. What great pictures of her beautiful, full of love - eyes! You captured them perfectedly for this post. Praying for the new drops to work!

Julie said...

Praying the new drops work!

Kristen said...

Awww...she is just so precious. I hope the new drops work. I'll pray for you regarding this and nights too.

Larry and Carol said...

We are praying the new drops will correct the pressure. You are in the best hands with God and Duke.
She is a beautiful little girl. XO's AC and Unk

Grandma Shultz said...

My precious, Darcy. You have such beautiful eyes. You've been so patient and courageous with the two operations and the drops twice a day and wearing the eye patch for 3 hours daily. Grandma is so proud of you! Am praying for healing from our loving God.

McNew Family said...

Krisit, lean into Him. Blessings on you all. Thank you, God, for awesome doctors who care about Darcy.

Heather said...

We'll be praying for Miss Darcy! What a beauty!!

Nancy said...

Oh no! That is disappointed. We will definitely be praying in PA!

Our Journey to China said...

So praying, sweet friend! So glad to have internet again - E is standing here saying, "d-q" in such a sweet voice. Love, hugs and prayers, my friend!

Traci said...

Darcy Q Aunt CICI loves you soooo very much. I know that it makes you sad to think about another surgery. I wish I could give you a big hug. Aunt Cici is praying that you won't have to have that and the drops work!!!
Love you

Jordan Carl said...

Breaks my heart. Darcy you are very special and Cousin Georgian loves you bunches! I'm praying for you, don't worry about a thing!

Ann Marie said...

Kristy--we've walked the exact path you are on. Nora has had the surgery. Let me know if you want to talk. Hugs and love. AM

Our Journey said...

What a brave girl - I'm sure this is a dissapointment, but know that we're keeping you & Darcy in our prayers!!

Cindy said...

Prayers for Darcy, she is so beautiful!

Anonymous said...

She is so beautiful! My girls and I enjoy looking at your blog! We will say a prayer for her eyesight.

The Pollards