God is bigger than the boogie man

We do watch a good bit of the Veggie Tales around here...

But seriously, at the end of our first surgery follow up today, this song ran through my mind.  "God is bigger than the boogie man.  He's bigger than Godzilla or the monsters on TV.  Ohhh God is bigger than the boogie man and watches out for you and me!"  (Click here if you want to watch the video.  Go ahead, you know you want to!)

Now we haven't been having any Boogie man sightings around here, but we have had Sturge Weber Syndrome and glaucoma trying to rear their ugly heads.  Type I (the most serious form) Sturge Weber was stopped dead in its tracks at our first ~ and to this point, only ~ visit to neurology back in April when the neurologist observed Darcy, gave a quick exam and then asked, "So why exactly are you here?"

And while glaucoma keeps trying to have the victory, today I heard news that delivered her glaucoma a real blow.

Oh, I totally forgot to mention that since her surgery in April that Darcy has grown over an inch in height. (Admittedly that has nothing to do with glaucoma, but I still thought it was pretty cool).

First of all, today, within minutes of having the gauze removed from her eye, Darcy had a vision test.  With her good eye patched, she was seeing pictures at 20/100 vision.  Dr. F. was amazed that she was so close to her best vision test (20/80) the day after surgery when things were expected to be cloudy.  And I also must say that she was able to verbally identify all the pictures ~ meaning that her vocabulary has improved ~ instead of pointing to a "match sheet" as she had to the first few visits.  

But the really cool part was when Dr. F. and I were discussing a few non-surgery related things today at the end of our visit.  I asked about prescription sunglasses for my little one (transition lenses will be our solution to that with her next frames) and then about eye drops in the future.  (Darcy will have daily drops for life ~ not a concern for us, more a curiosity question).  After we chatted about drops and Dr. F's hopes that this surgery will be the last, Dr. F. started heading for the door.  And as she began to step out she stopped and sorta hesitated before she said, "You know, this little girl is amazing.  When I saw her for the first time, I think I told you that we were simply trying to allow her to have light recognition in that eye.  Now, four months later, we are working to preserve real vision.  I never would have thought..."  Then her voice trailed off as she smiled and walked out the door.

(Think about it for a minute.  These words coming from a doctor who treats pediatric glaucoma patients not just from all over NC and across this country, but also internationally.  She has seen many, many children with advanced glaucoma.  She's an expert, and yet she has no words for how well Darcy's eye has responded to treatment thus far ).

That my friends is God showing up in my baby girl's life.  I don't know why He has chosen to reveal Himself in such a big way regarding her vision, but it does make me look forward to His plan for her.  I just couldn't let this day pass without giving my creator a huge shout out.

Sing it with me now, "God is bigger than glau-co-ooh-ma..."